Recent Facebook Posts

I’m a day late sharing this for aHUS Awareness Day, but it’s still the 24th in some parts of the world, so here goes anyway. This video made by our awesome friend Jeff contains many of the faces and art..

11 likes, 1 comments5 days ago

This afternoon following Jethro’s infusion he had a nasty reaction to… something. We’re in hospital overnight to get to the bottom of it. Running tests for transfusion reaction or low immunoglobens…

2 likes, 3 comments1 week ago

Awesome news today regarding Jethro’s eyesight. As some people may be aware Jethro had a very weak left eye that turned in when he was a toddler. They thought we’d be patching it until he was 7 and they..

41 likes, 4 comments1 week ago

8 likes, 0 comments1 week ago

10,000 hands to save a little boy’s life

Donate –

You’ve helped raise..

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